Making an Impact on the World
Every decision we make, no matter how small, has the potential to create a ripple effect that can change the...
PKU Advocacy and Finding Your Voice
PKU Advocacy and Finding Your Voice – A personal reflection on the power of telling your story and advocating for...
Navigating Shame and PKU
In this blog, I share my personal experiences of navigating shame and PKU while exploring topics such as mental health...
Regaining Hope: My Mental Health Story
Explore a personal narrative of living with PKU, facing mental health challenges, and the journey to regain hope and resilience....
An Unexpected Moment of Gratitude
I don’t cry often. But a recent experience while flying home hit me in the chest in a way that...
What is PKU Journal?
I will tell you something about stories… They aren’t just entertainment. Don’t be fooled. They are all we have, you...
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I’ve been an advocate for PKU, newborn screening, and rare disease awareness since 2012. My first project was a film called “My PKU Life”, and since then I’ve been traveling around the world speaking about life with this rare disease and producing other media projects about PKU..
