Explore the raw and personal journey of dealing with PTSD and emotional triggers in this expanded blog article accompanying my […]
Explore the remarkable leadership lessons drawn from the life of Major Richard Winters, an extraordinary figure from World War II. […]
Sometimes it takes confronting your darkest moments to embrace living with a mission. This is the story about how I […]
Explore hope amidst dark circumstances with this episode as we delve into a journey of advocacy and personal past experiences, […]
Today I explore the power of sharing your unique experiences and the importance of embracing self-worth. And try to remember […]
As a storyteller reflecting on a national tragedy, I share a personal journey of growth in my podcast episode “The […]
Reflect on the journey of rare disease advocacy, personal growth, and hope for the future in this episode. One year […]
This episode is a reflection on grief during the holidays. Sometimes these reflections on life that I share aren’t really […]
The rare disease community is a tight-knit group. In the latest episode of Never Give Up: A Rare Disease Podcast […]
In this brief podcast episode, I reflect on why I signed off every episode of Season 1 with the phrase […]
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About Me
PKU, Newborn Screening, & Rare Disease Advocate
I am a storyteller who lives with the rare metabolic disorder Phenylketonuria (PKU). Since 2012, I have traveled internationally sharing my story and encouraging others to share theirs.