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In this episode, I reflect on the importance of recognizing our limits while navigating life’s challenges. I share personal stories […]
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In this episode of Never Give Up, I delve into the impact of being a healing presence in the rare […]
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In my latest episode, “Call Me Bob,” I delve into the life and legacy of Dr. Robert Guthrie, a pioneering […]
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Explore the emotional toll of rare disease advocacy in this heartfelt blog article. I share personal insights and experiences, highlighting […]
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Explore the raw and personal journey of dealing with PTSD and emotional triggers in this expanded blog article accompanying my […]
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Explore the remarkable leadership lessons drawn from the life of Major Richard Winters, an extraordinary figure from World War II. […]
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Sometimes it takes confronting your darkest moments to embrace living with a mission. This is the story about how I […]
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In this deeply personal episode, I share my struggles with PKU treatment and how it affected my academic and professional […]
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Explore hope amidst dark circumstances with this episode as we delve into a journey of advocacy and personal past experiences, […]
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This is a story from PKU history. It’s about the impact of advocacy and the significant role it plays in […]
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
