The Healing Power of Friendship
Friendship heals broken hearts. And it’s the best part about engaging in PKU or rare disease advocacy. If you open...
The Battle for Self-Worth
As someone who has battled with a positive sense of self-worth, I share my personal journey in this article. This...
The Power of Storytelling
In this brief reflection on life, I discuss the power of storytelling and the human touch in content creation, reminding...
Rare Disease Advocacy and Burnout
In this article, I reflect on my personal journey of rare disease advocacy and burnout. Join me as I reflect...
Regaining Hope: My Journey to Rare Disease Advocacy
As someone who has been involved in rare disease advocacy for a long time, I am sharing my journey of...
Life, Mental Health, and Rare Disease
Exploring Life, Mental Health, and Rare Disease Through the Lens of ‘Never Give Up: A Rare Disease Podcast’ It’s been...
Announcing Never Give Up: A Rare Disease Podcast
Never Give Up: A Rare Disease Podcast Recently I announced my new creative project: “Never Give Up: A Rare Disease...
Remembering Space Shuttle Columbia
In 2003, the world was rocked by the Space Shuttle Columbia disaster, in which the shuttle broke apart upon re-entry...
PKU Advocacy and Burnout
As a TV photojournalist and PKU advocate, I’ve experienced both the highs of promoting awareness for a rare disease and...
Embracing Life’s Dualities: Finding Beauty Amidst Adversity
Life is full of ups and downs, and sometimes the downs can feel overwhelming. But even in the darkest of...
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I’ve been an advocate for PKU, newborn screening, and rare disease awareness since 2012. My first project was a film called “My PKU Life”, and since then I’ve been traveling around the world speaking about life with this rare disease and producing other media projects about PKU..
