This is my story. This is My PKU Life. A film I produced in 2011. It’s amazing to see the […]
This is my story. This is My PKU Life. A film I produced in 2011. It’s amazing to see the […]
The story of newborn screening is about a changed generation. In 2013 I produced this video for the Association of […]
“For Katy”: A Film About Newborn Screening Newborn screening is a human right. It saves lives. This film, “For Katy” […]
On February 29, 2024 I appeared on KTAL and KMSS to discuss Rare Disease Day. Here is video from the […]
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About Me
PKU, Newborn Screening, & Rare Disease Advocate
I am a storyteller who lives with the rare metabolic disorder Phenylketonuria (PKU). Since 2012, I have traveled internationally sharing my story and encouraging others to share theirs.