I produced My PKU Life 2011 and released it on YouTube. In 2023 it was added to The Disorder Channel, […]
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Every year over four million US newborns are screened for genetic and metabolic conditions and hearing loss as part of a process […]
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For Katy I produced this short documentary in 2013 to raise awareness of newborn screening. And for the 10-year anniversary […]
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Rare Disease Day 2024
Posted by
Kevin Alexander
Rare Disease, Videos
On February 29, 2024—Rare Disease Day—I appeared on local media to discuss Rare Disease Day. Here is the video of […]
About Me
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PKU, Newborn Screening, & Rare Disease Advocate
I’ve been an advocate for PKU, newborn screening, and rare disease awareness since 2012. My first project was a film called “My PKU Life”, and since then I’ve been traveling around the world speaking about life with this rare disease and producing other media projects about PKU..