PKU Advocacy and Finding Your Voice – A personal reflection on the power of telling your story and advocating for […]
Shame and PKU. That’s something we don’t always talk about. Because as a society we tend to avoid discussions about […]
This is my story. This is My PKU Life. A film I produced in 2011. It’s amazing to see the […]
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About Me
PKU, Newborn Screening, & Rare Disease Advocate
I’ve been an advocate for PKU, newborn screening, and rare disease awareness since 2012. My first project was a film called “My PKU Life”, and since then I’ve been traveling around the world speaking about life with this rare disease and producing other media projects about PKU.