Never Give Up: A Rare Disease Podcast - PKU Journal

Graphic with the text: 'Never, Never, Never Give Up.' A motivational message emphasizing resilience and perseverance.

FEATURED STORY

NEVER GIVE UP:
A RARE DISEASE PODCAST

Never, Never, Never Give Up. That's not just a slogan. It's a way of life. I created this storytelling podcast to share experiences with you. Experiences from my life, from my rare disease community, and from history. If you're new to the podcast I recommend you begin from the beginning—an episode called "Regaining Hope: My Journey to Rare Disease Advocacy."

PKUJournal encouragement to be a healing presence in the rare disease community

Be A Healing Presence in the Rare Disease Community

In this episode of Never Give Up, I delve into the impact of being a healing presence in the rare […]

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PKUJournal reflection on the importance of recognizing personal limits

Recognize Your Limits: A Story About Self-Care

In this episode, I reflect on the importance of recognizing our limits while navigating life’s challenges. I share personal stories […]

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