Today I explore the power of sharing your unique experiences and the importance of embracing self-worth. And try to remember […]
Join me, Kevin Alexander, as I share my rare disease story, living with Phenylketonuria (PKU), and the lessons I’ve learned […]
This is a story from PKU history. It’s about the impact of advocacy and the significant role it plays in […]
Explore hope amidst dark circumstances with this episode as we delve into a journey of advocacy and personal past experiences, […]
In this deeply personal episode, I share my struggles with PKU treatment and how it affected my academic and professional […]
Sometimes it takes confronting your darkest moments to embrace living with a mission. This is the story about how I […]
Explore the remarkable leadership lessons drawn from the life of Major Richard Winters, an extraordinary figure from World War II. […]
Explore the raw and personal journey of dealing with PTSD and emotional triggers in this expanded blog article accompanying my […]
Explore the emotional toll of rare disease advocacy in this heartfelt blog article. I share personal insights and experiences, highlighting […]
In my latest episode, “Call Me Bob,” I delve into the life and legacy of Dr. Robert Guthrie, a pioneering […]
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
