As a storyteller reflecting on a national tragedy, I share a personal journey of growth in my podcast episode “The […]

Reflect on the journey of rare disease advocacy, personal growth, and hope for the future in this episode. One year […]

This episode is a reflection on grief during the holidays. Sometimes these reflections on life that I share aren’t really […]

The rare disease community is a tight-knit group. In the latest episode of Never Give Up: A Rare Disease Podcast […]

In this brief podcast episode, I reflect on why I signed off every episode of Season 1 with the phrase […]

Finding Beauty in Life’s Challenges… It’s not always easy. But I’ve found that searching for beauty even in the darkest […]

Fear is the root of Imposter Syndrome. And it’s something those of us in rare disease advocacy experience. And it’s […]

In this story I share personal stories and insights about overcoming trauma and embracing life. And I discuss how life […]

A fallen officer. A survivor. A mother and child saved. Discover how one person’s sacrifice set off a chain reaction, […]

Making healthy choices is an important part of becoming a whole, integrated person. We live in a society that demands […]