A Story From PKU History: “When Are You Going To Treat My Child?”
This is a story from PKU history. It’s about the impact of advocacy and the significant role it plays in...
This is a story from PKU history. It’s about the impact of advocacy and the significant role it plays in...
Join me, Kevin Alexander, as I share my rare disease story, living with Phenylketonuria (PKU), and the lessons I’ve learned...
Today I explore the power of sharing your unique experiences and the importance of embracing self-worth. And try to remember...
As a storyteller reflecting on a national tragedy, I share a personal journey of growth in my podcast episode “The...
Today, I’m reflecting on 2023. But also looking ahead to 2024, and what’s in store for life, advocacy, and my...
This episode is a reflection on grief during the holidays. Sometimes these reflections on life that I share aren’t really...
This PKU Awareness Day I’m exploring the beauty of uniqueness and the profound impact we can have by daring to...
The PKU community is one global community. That’s something I feel very deeply after the 2023 ESPKU Conference. This final...
In my role as a PKU storyteller and advocate, I have to look at things from many perspectives. However, as...
Finding your rare disease community can change your life. That’s true of my own life, and it’s true of the...
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
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