The newborn screening system is a public health legacy. This is a column from a guest contributor, Dr. Joanne Mei, […]
Newborn Screening Awareness Month is a time to remember that newborn screening saves lives. But also a time to take […]
Newborn screening advocacy matters. It’s a story that we need to keep sharing—that all babies born in the world deserve […]
What is the newborn screening system? That’s a subject I’ve been thinking about since my previous article, “Newborn Screening is […]
This article is a reflection on a recent decision affecting newborn screening policy in the United States. Let me be […]
In my latest episode, “Call Me Bob,” I delve into the life and legacy of Dr. Robert Guthrie, a pioneering […]
“For Katy”: A Film About Newborn Screening Newborn screening is a human right. It saves lives. This film, “For Katy” […]
I was diagnosed with PKU at 9 days old thanks to newborn screening. Newborn screening saved my life, but I […]
Every decision we make, no matter how small, has the potential to create a ripple effect that can change the […]
The story of newborn screening is about a changed generation. In 2013 I produced this video for the Association of […]
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About Me
PKU, Newborn Screening, & Rare Disease Advocate
I am a storyteller who lives with the rare metabolic disorder Phenylketonuria (PKU). Since 2012, I have traveled internationally sharing my story and encouraging others to share theirs.