I have a philosophy that guides my PKU advocacy—help and move on. This is a reflection on how to stay […]
This reflection explores the complexities of grief and resilience in advocacy, and the need for emotional support in the PKU […]
In this episode, I reflect on the importance of recognizing our limits while navigating life’s challenges. I share personal stories […]
In this episode of Never Give Up, I delve into the impact of being a healing presence in the rare […]
The emotional toll of rare disease advocacy is real. Very real. Advocacy is speaking on behalf of another, which means […]
Explore the raw and personal journey of dealing with PTSD and emotional triggers in this expanded blog article accompanying my […]
Explore the remarkable leadership lessons drawn from the life of Major Richard Winters, an extraordinary figure from World War II. […]
Sometimes it takes confronting your darkest moments to embrace living with a mission. This is the story about how I […]
Explore hope amidst dark circumstances with this episode as we delve into a journey of advocacy and personal past experiences, […]
Today I explore the power of sharing your unique experiences and the importance of embracing self-worth. And try to remember […]
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About Me
PKU, Newborn Screening, & Rare Disease Advocate
I am a storyteller who lives with the rare metabolic disorder Phenylketonuria (PKU). Since 2012, I have traveled internationally sharing my story and encouraging others to share theirs.