Triggered: A Story About PTSD and Emotional Triggers
Explore the raw and personal journey of dealing with PTSD and emotional triggers in this expanded blog article accompanying my...
Living With A Mission
Sometimes it takes confronting your darkest moments to embrace living with a mission. This is the story about how I...
My Summer of Sound – Music And Mental Health
In this blog post, I share how music is helping me through a period of reflection and growth. I explore...
Confronting Imposter Syndrome as a Rare Disease Advocate
Fear is the root of Imposter Syndrome. And it’s something those of us in rare disease advocacy experience. And it’s...
Overcoming Trauma and Embracing Life
In this blog post, I share personal stories and insights about overcoming trauma and embracing life. This is a reflection...
The Power of Choices: Making an Impact on the World
In this blog post, I reflect on the power of choices and how they can impact the world. I share...
Healthy Choices Start Now
Making healthy choices is an important part of becoming a whole, integrated person. We live in a society that demands...
Announcing Never Give Up: A Rare Disease Podcast
Never Give Up: A Rare Disease Podcast Recently I announced my new creative project: “Never Give Up: A Rare Disease...
The Battle for Self-Worth: Navigating Shame and PKU
In this blog, I share my personal experiences of navigating shame and PKU while exploring topics such as mental health...
Regaining Hope: My Mental Health Story
This is a story about hope. Believing in hope. Losing hope. Regaining hope. It’s about mental health—my mental health. I...
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About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
