My Summer of Sound – Music And Mental Health
In this blog post, I share how music is helping me through a period of reflection and growth. I explore...
Accepting Your Rare Disease Life
Season 1 of Never Give Up: A Rare Disease Podcast has come to a close. The tenth and final episode...
Life is Amazing: Finding Beauty in Life’s Challenges
Finding Beauty in Life’s Challenges… As I wrap up season one of my podcast, Never Give Up: A Rare Disease...
The Power of Storytelling
In this brief reflection on life, I discuss the power of storytelling and the human touch in content creation, reminding...
Announcing Never Give Up: A Rare Disease Podcast
Never Give Up: A Rare Disease Podcast Recently I announced my new creative project: “Never Give Up: A Rare Disease...
Remembering Space Shuttle Columbia
In 2003, the world was rocked by the Space Shuttle Columbia disaster, in which the shuttle broke apart upon re-entry...
Life Is Amazing – Finding Beauty in Life’s Challenges
Life is full of ups and downs, and sometimes the downs can feel overwhelming. But even in the darkest of...
Making an Impact on the World
Every decision we make, no matter how small, has the potential to create a ripple effect that can change the...
PKU Advocacy and Finding Your Voice
PKU Advocacy and Finding Your Voice – A personal reflection on the power of telling your story and advocating for...
An Unexpected Moment of Gratitude
I don’t cry often. But a recent experience while flying home hit me in the chest in a way that...
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About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
