Recognize Your Limits – A Story About Self-Care
In this episode, I reflect on the importance of recognizing our limits while navigating life’s challenges. I share personal stories...
Be A Healing Presence in the Rare Disease Community
In this episode of Never Give Up, I delve into the impact of being a healing presence in the rare...
Lead From the Front: A Leadership Story From World War II
Explore the remarkable leadership lessons drawn from the life of Major Richard Winters, an extraordinary figure from World War II....
Life Moves On: A Story of Hope
Explore hope amidst dark circumstances with this episode as we delve into a journey of advocacy and personal past experiences,...
Your Story Matters
Today I explore the power of sharing your unique experiences and the importance of embracing self-worth. And try to remember...
The Power of Small Decisions
As a storyteller reflecting on a national tragedy, I share a personal journey of growth in my podcast episode “The...
Looking Back, Looking Ahead
Today, I’m reflecting on 2023. But also looking ahead to 2024, and what’s in store for life, advocacy, and my...
People are Priceless – A Reflection on Grief During the Holidays
This episode is a reflection on grief during the holidays. Sometimes these reflections on life that I share aren’t really...
When You Never Have To Say Goodbye
The rare disease community is a tight-knit group. In the latest episode of Never Give Up: A Rare Disease Podcast...
Never, Never, Never Give Up
In this brief podcast episode, I reflect on why I signed off every episode of Season 1 with the phrase...
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About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
