The Emotional Toll of Rare Disease Advocacy
Explore the emotional toll of rare disease advocacy in this heartfelt blog article. I share personal insights and experiences, highlighting...
Rare Disease Advocacy and Burnout
In this article, I reflect on my personal journey of rare disease advocacy and burnout. Join me as I reflect...
PKU Advocacy and Burnout
As a TV photojournalist and PKU advocate, I’ve experienced both the highs of promoting awareness for a rare disease and...
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
