Posts by Kevin Alexander

About Kevin Alexander

I am a storyteller who lives with the rare metabolic disorder Phenylketonuria (PKU). Since 2012, I have traveled internationally sharing my story and encouraging others to share theirs.

Graphic displaying the title 'An Unexpected Moment of Gratitude' from PKU Journal.

An Unexpected Moment of Gratitude

I don’t cry often. But a recent experience while flying home hit me in the chest in a way that […]

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Featured image with the text: “What Is PKU Journal?” on a clean background, representing clarity and personal storytelling in rare disease advocacy.

What is PKU Journal?

Reflections on PKU, newborn screening, rare disease, and mental health advocacy. That’s what PKU Journal is all about. Hello, I’m […]

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Kevin Alexander sharing his journey with Phenylketonuria (PKU) in 'My PKU Life' film.

My PKU Life

This is my story. This is My PKU Life. A film I produced in 2011. It’s amazing to see the […]

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