Call Me Bob – A Story About Dr Robert Guthrie
In my latest episode, “Call Me Bob,” I delve into the life and legacy of Dr. Robert Guthrie, a pioneering...
The Emotional Toll of Rare Disease Advocacy
Explore the emotional toll of rare disease advocacy in this heartfelt blog article. I share personal insights and experiences, highlighting...
Triggered: A Story About PTSD and Emotional Triggers
Explore the raw and personal journey of dealing with PTSD and emotional triggers in this expanded blog article accompanying my...
Lead From the Front: A Leadership Story From World War II
Explore the remarkable leadership lessons drawn from the life of Major Richard Winters, an extraordinary figure from World War II....
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
