One Global Community – A Vision for the PKU Community
The PKU community is one global community. That’s something I feel very deeply after the 2023 ESPKU Conference. This final...
In This Together – A PKU Adult Perspective
In my role as a PKU storyteller and advocate, I have to look at things from many perspectives. However, as...
Finding Your Rare Disease Community
Finding your rare disease community can change your life. That’s true of my own life, and it’s true of the...
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
