Accepting Your Rare Disease Life
Season 1 of Never Give Up: A Rare Disease Podcast has come to a close. The tenth and final episode...
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
