Life is Amazing: Finding Beauty in Life’s Challenges
Finding Beauty in Life’s Challenges… As I wrap up season one of my podcast, Never Give Up: A Rare Disease...
Confronting Imposter Syndrome as a Rare Disease Advocate
Fear is the root of Imposter Syndrome. And it’s something those of us in rare disease advocacy experience. And it’s...
Overcoming Trauma and Embracing Life
In this blog post, I share personal stories and insights about overcoming trauma and embracing life. This is a reflection...
The Power of Choices: Making an Impact on the World
In this blog post, I reflect on the power of choices and how they can impact the world. I share...
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
