Healthy Choices Start Now
Making healthy choices is an important part of becoming a whole, integrated person. We live in a society that demands...
The Healing Power of Friendship
Friendship heals broken hearts. And it’s the best part about engaging in PKU or rare disease advocacy. If you open...
The Battle for Self-Worth
As someone who has battled with a positive sense of self-worth, I share my personal journey in this article. This...
The Power of Storytelling
In this brief reflection on life, I discuss the power of storytelling and the human touch in content creation, reminding...
To The Moon and Back: A Message to Rare Disease Parents
Rare disease parents are some of the most dedicated and loving people you will ever meet. As a rare disease...
Rare Disease Advocacy and Burnout
In this article, I reflect on my personal journey of rare disease advocacy and burnout. Join me as I reflect...
Regaining Hope: My Journey to Rare Disease Advocacy
As someone who has been involved in rare disease advocacy for a long time, I am excited to share my...
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
