Announcing Never Give Up: A Rare Disease Podcast
Never Give Up: A Rare Disease Podcast Recently I announced my new creative project: “Never Give Up: A Rare Disease...
Why Rare Disease Patient Advocacy Matters
Let’s talk about rare disease patient advocacy. We can use the word “advocacy” so much that it begins to lose...
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
