Regaining Hope: My Mental Health Story
This is a story about hope. Believing in hope. Losing hope. Regaining hope. It’s about mental health—my mental health. I...
The Story of Newborn Screening
Every year over four million US newborns are screened for genetic and metabolic conditions and hearing loss as part of a process...
An Unexpected Moment of Gratitude
I don’t cry often. But a recent experience while flying home hit me in the chest in a way that...
What Is PKU Journal?
I will tell you something about stories… They aren’t just entertainment. Don’t be fooled. They are all we have, you...
My PKU Life
I produced My PKU Life 2011 and released it on YouTube. In 2023 it was added to The Disorder Channel,...
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
