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Every decision we make, no matter how small, has the potential to create a ripple effect that can change the […]
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PKU Advocacy and Finding Your Voice – A personal reflection on the power of telling your story and advocating for […]
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In this blog, I share my personal experiences of navigating shame and PKU while exploring topics such as mental health […]
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Explore a personal narrative of living with PKU, facing mental health challenges, and the journey to regain hope and resilience. […]
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I don’t cry often. But a recent experience while flying home hit me in the chest in a way that […]
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I will tell you something about stories… They aren’t just entertainment. Don’t be fooled. They are all we have, you […]
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I’ve been an advocate for PKU, newborn screening, and rare disease awareness since 2012. My first project was a film called “My PKU Life”, and since then I’ve been traveling around the world speaking about life with this rare disease and producing other media projects about PKU..
