0
Friendship heals broken hearts. And it’s the best part about engaging in PKU or rare disease advocacy. If you open […]
0
As someone who has battled with a positive sense of self-worth, I share my personal journey in this article. This […]
0
In this brief reflection on life, I discuss the power of storytelling and the human touch in content creation, reminding […]
0
In this article, I reflect on my personal journey of rare disease advocacy and burnout. Join me as I reflect […]
2
As someone who has been involved in rare disease advocacy for a long time, I am sharing my journey of […]
2
Exploring Life, Mental Health, and Rare Disease Through the Lens of ‘Never Give Up: A Rare Disease Podcast’ It’s been […]
1
Never Give Up: A Rare Disease Podcast Recently I announced my new creative project: “Never Give Up: A Rare Disease […]
0
In 2003, the world was rocked by the Space Shuttle Columbia disaster, in which the shuttle broke apart upon re-entry […]
0
As a TV photojournalist and PKU advocate, I’ve experienced both the highs of promoting awareness for a rare disease and […]
0
Life is full of ups and downs, and sometimes the downs can feel overwhelming. But even in the darkest of […]
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I’ve been an advocate for PKU, newborn screening, and rare disease awareness since 2012. My first project was a film called “My PKU Life”, and since then I’ve been traveling around the world speaking about life with this rare disease and producing other media projects about PKU..
