Rare Disease Day 2024
On February 29, 2024—Rare Disease Day—I appeared on local media to discuss Rare Disease Day. Here is the video of...
For Katy – A Film About Newborn Screening
For Katy I produced this short documentary in 2013 to raise awareness of newborn screening. And for the 10-year anniversary...
The Story of Newborn Screening
Every year over four million US newborns are screened for genetic and metabolic conditions and hearing loss as part of a process...
My PKU Life
I produced My PKU Life 2011 and released it on YouTube. In 2023 it was added to The Disorder Channel,...
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
