On February 29, 2024 I appeared on KTAL and KMSS to discuss Rare Disease Day. Here is video from the […]
For Katy Newborn screening is a human right. It saves lives. This film, “For Katy” tells the story of a […]
The story of newborn screening is about a changed generation. In 2013 I produced this video for the Association of […]
This is my story. This is My PKU Life. A film I produced in 2011. It’s amazing to see the […]
Featured Article
Recent Posts
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I’ve been an advocate for PKU, newborn screening, and rare disease awareness since 2012. My first project was a film called “My PKU Life”, and since then I’ve been traveling around the world speaking about life with this rare disease and producing other media projects about PKU.