A Story From PKU History: “When Are You Going To Treat My Child?”
This is a story from PKU history. It’s about the impact of advocacy and the significant role it plays in...
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I’ve been an advocate for PKU, newborn screening, and rare disease awareness since 2012. My first project was a film called “My PKU Life”, and since then I’ve been traveling around the world speaking about life with this rare disease and producing other media projects about PKU..
