Owning Your Rare Disease Story
Join me, Kevin Alexander, as I share my rare disease story, living with Phenylketonuria (PKU), and the lessons I’ve learned...
The Power of Small Decisions
As a storyteller reflecting on a national tragedy, I share a personal journey of growth in my podcast episode “The...
Looking Back, Looking Ahead
Today, I’m reflecting on 2023. But also looking ahead to 2024, and what’s in store for life, advocacy, and my...
Dare to be Different on PKU Awareness Day
This PKU Awareness Day I’m exploring the beauty of uniqueness and the profound impact we can have by daring to...
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
