What Is PKU Journal?
I will tell you something about stories… They aren’t just entertainment. Don’t be fooled. They are all we have, you...
I'm an adult living with PKU. I'm also a filmmaker, and since 2012 I've been traveling the world as a PKU and newborn screening advocate. I'm a volunteer for the National PKU Alliance, Vice President of the Louisiana Metabolic Disorders Coaltion, and a member of the International Society of Neonatal Screening.
I will tell you something about stories… They aren’t just entertainment. Don’t be fooled. They are all we have, you...
I produced My PKU Life 2011 and released it on YouTube. In 2023 it was added to The Disorder Channel,...
I produced my first PKU short documentary, "My PKU Life", in 2011. Since then I've been traveling the world speaking as a PKU & newborn screening advocate and producing videos about PKU.
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