An Unexpected Moment of Gratitude
I don’t cry often. But a recent experience while flying home hit me in the chest in a way that...
What is PKU Journal?
I will tell you something about stories… They aren’t just entertainment. Don’t be fooled. They are all we have, you...
My PKU Life
I produced My PKU Life 2011 and released it on YouTube. In 2023 it was added to The Disorder Channel,...
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I’ve been an advocate for PKU, newborn screening, and rare disease awareness since 2012. My first project was a film called “My PKU Life”, and since then I’ve been traveling around the world speaking about life with this rare disease and producing other media projects about PKU..
