Overcoming Trauma and Embracing Life
In this blog post, I share personal stories and insights about overcoming trauma and embracing life. This is a reflection...
The Power of Choices: Making an Impact on the World
In this blog post, I reflect on the power of choices and how they can impact the world. I share...
Healthy Choices Start Now
Making healthy choices is an important part of becoming a whole, integrated person. We live in a society that demands...
The Healing Power of Friendship
Friendship heals broken hearts. And it’s the best part about engaging in PKU or rare disease advocacy. If you open...
The Battle for Self-Worth
As someone who has battled with a positive sense of self-worth, I share my personal journey in this article. This...
The Power of Storytelling
In this brief reflection on life, I discuss the power of storytelling and the human touch in content creation, reminding...
To The Moon And Back: A Message to Rare Disease Parents
Rare disease parents are some of the most dedicated and loving people you will ever meet. As a rare disease...
Rare Disease Advocacy and Burnout
In this article, I reflect on my personal journey of rare disease advocacy and burnout. Join me as I reflect...
Regaining Hope: My Journey to Rare Disease Advocacy
As someone who has been involved in rare disease advocacy for a long time, I am sharing my journey of...
Life, Mental Health, and Rare Disease
Exploring Life, Mental Health, and Rare Disease Through the Lens of ‘Never Give Up: A Rare Disease Podcast’ It’s been...
About Me
PKU, Newborn Screening, & Rare Disease Advocate
I’ve been an advocate for PKU, newborn screening, and rare disease awareness since 2012. My first project was a film called “My PKU Life”, and since then I’ve been traveling around the world speaking about life with this rare disease and producing other media projects about PKU..
