Explore the raw and personal journey of dealing with PTSD and emotional triggers in this expanded blog article accompanying my […]
Explore the remarkable leadership lessons drawn from the life of Major Richard Winters, an extraordinary figure from World War II. […]
Sometimes it takes confronting your darkest moments to embrace living with a mission. This is the story about how I […]
In this deeply personal episode, I share my struggles with PKU treatment and how it affected my academic and professional […]
Explore hope amidst dark circumstances with this episode as we delve into a journey of advocacy and personal past experiences, […]
This is a story from PKU history. It’s about the impact of advocacy and the significant role it plays in […]
On February 29, 2024 I appeared on KTAL and KMSS to discuss Rare Disease Day. Here is video from the […]
Owning your rare disease story is about embracing the power of your voice. Your story is your story, your voice […]
Today I explore the power of sharing your unique experiences and the importance of embracing self-worth. And try to remember […]
As a storyteller reflecting on a national tragedy, I share a personal journey of growth in my podcast episode “The […]
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About Me
PKU, Newborn Screening, & Rare Disease Advocate
I’ve been an advocate for PKU, newborn screening, and rare disease awareness since 2012. My first project was a film called “My PKU Life”, and since then I’ve been traveling around the world speaking about life with this rare disease and producing other media projects about PKU.